Tuesday, October 27, 2015

Reader's For Rett's Awareness Event ~ 2015

Tomorrow is the Readers for Rett's Awareness Event 2015.  As before this years event is centered on bringing together authors, readers and Rett's families to help raise awareness for Rett's Syndrome. 

This year the event is being dedicated to the girl who inspired the event in the first place, Gabby Jankowski. We will be sharing memories of her, as well as stories of the other Rett's children who suffer from this horrible condition.

As with last year we will also have some amazing giveaways for the attendees of the event. I will be sharing the prizes available here since it's just a bit easier to share them all at once and I will put a link to that post here as soon as it goes live. 

For those of you who dont' know anything about Rett's Syndrome here are some quick facts.

What is Rett Syndrome?

—Debilitating neurological (movement) disorder that predominantly affects females.
—Baby girls are born "normal" but begin to lose acquired skills between the ages of 1-3 years old.
—Caused by a single gene mutation that leads to underproduction of an important brain protein.
—The leading genetic cause of severe impairment in girls - most cannot speak, walk or use their hands.
—Despite their physical disabilities, girls with Rett Syndrome are believed to be functioning mentally at a much higher level than previously thought.
—As prevalent as Cystic Fibrosis, ALS and Huntington's.
—Another little girl is born with Rett Syndrome every 90 minutes.
—Rett Syndrome is a potentially REVERSIBLE disorder. Research has proven once protein levels are back to normal levels, symptoms subside.

A special thank you to the Rett families joining us and sharing your stories. You children truly are warriors.

And a final thank you to graphic designer Zackary from Raven Tree Design for donating his time and creating the graphics for the event.

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