Hi guys so this is my first time doing this, so please be gentle! The awesome author Rae Z. Ryans and I will be co-hosting an event together!The event is called Readers for Retts. We decided to set it up to help spread the word about Rett's Syndrome and introduce the families and girls suffering from this awful disease. (If you want to find out more about Retts itself please feel free to follow this link and see what it's about. To actually meet a sufferer of Retts click here.)
Now onto the details of the event:
We are currently seeking authors, bloggers, Rett families, and small businesses to help us spread the word about Rett Syndrome. We are looking for people interested in opportunities to host families, hold interviews, and spread the word about this disease affecting families and their daughters. Also we planning to pair up Rett's families/girls with sponsors who will offer giveaways on their behalf.
Some small info on what is Rett Syndrome?
QUICK FACTS:
—Debilitating neurological (movement) disorder that predominantly affects females. (Boys generally die from it because of the genetics involved)
—Baby girls are born "normal" but begin to lose acquired skills between the ages of 1-3 years old.
—Caused by a single gene mutation that leads to underproduction of an important brain protein.
—The leading genetic cause of severe impairment in girls - most cannot speak, walk or use their hands.
—Despite their physical disabilities, girls with Rett Syndrome are believed to be functioning mentally at a much higher level than previously thought.
—As prevalent as Cystic Fibrosis, ALS and Huntington's.
—Another little girl is born with Rett Syndrome every 90 minutes.
—Rett Syndrome is a potentially REVERSIBLE disorder. Research has proven once protein levels are back to normal levels, symptoms subside.
Now back to the event. The awareness party will be held on Facebook,so yes you will need a Facebook account to particpate as a sponsor for the even. However if you don't have one, but still wish to help spread the word, we can work with that too. Time and date: We plan to start the event October 3rd @ 10 a.m. CDT. However the length is still up in the air until we find out exactly how many sponsors and families we have to work with. We are planning it for October as it is National Rett Awareness Month.
If you are interested in participating or spreading the word click on the link and fill out the form below.
Readers For Rett's Event Form
I also have buttons to share if you want to set up your own post to help promote this event. Please just email us a link to the post once it is live if you do so we can give thanks at the event to all who have helped in any way. Also we are asking if you do have a Facebook account/page to change your profile pic to one of the buttons to help spread the word.
I have a blog if you give me the info I can post on it.
ReplyDeleteThat is awesome! Thank you so much! Please click on the link and sign up via the form. It helps us to keep track of all the people involved and then I will have your email without having to post it here. :)
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